2010

Authors

  • Mark Bensink Mark Bensink
  • Richard Wootton Richard Wootton
  • Helen Irving Helen Irving
  • Andrew R. Hallahan Andrew R. Hallahan
  • Deborah Theodoros Deborah Theodoros
  • Trevor Russell Trevor Russell
  • Paul Scuffham Paul Scuffham
  • Adrian Barnett Adrian Barnett

Background: Providing ongoing family centred support is an integral part of childhood cancer care. For families living in regiol and remote areas, opportunities to receive specialist support are limited by the availability of health care professiols and accessibility, which is often reduced due to distance, time, cost and transport. The primary aim of this work is to investigate the cost-effectiveness of videotelephony to support regiol and remote families returning home for the first time with a child newly diagnosed with cancer Methods/design: We will recruit 162 paediatric oncology patients and their families to a single centre randomised controlled trial. Patients from regiol and remote areas, classified by Accessibility/ Remoteness Index of Australia (ARIA+) greater than 0.2, will be randomised to a videotelephone support intervention or a usual support control group. Metropolitan families (ARIA+ = 0.2) will be recruited as an additiol usual support control group. Families allocated to the videotelephone support intervention will have access to usual support plus education, communication, counselling and monitoring with specialist multidiscipliry team members via a videotelephone service for a 12-week period following first discharge home. Families in the usual support control group will receive standard care i.e., specialist multidiscipliry team members provide support either face-to-face during inpatient stays, outpatient clinic visits or home visits, or via telephone for families who live far away from the hospital. The primary outcome measure is parental health related quality of life as measured using the Medical Outcome Survey (MOS) Short Form SF-12 measured at baseline, 4 weeks, 8 weeks and 12 weeks. The secondary outcome measures are: parental informatiol and emotiol support; parental perceived stress, parent reported patient quality of life and parent reported sibling quality of life, parental satisfaction with care, cost of providing improved support, health care utilisation and fincial burden for families. Discussion: This investigation will establish the feasibility, acceptability and cost-effectiveness of using videotelephony to improve the clinical and psychosocial support provided to regiol and remote paediatric oncology patients and their families.